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During the COVID -19 pandemic, data sharing plays a vital role in the enhancement of public health measures to vaccine development. As there is a lot of manpower, financial resources involved in the data collection, data sharing can mitigate these burdens. However, there are always concerns about data security, privacy, and confidentiality in regards to data sharing. To overcome these problems, standards protocols should be followed while accessing the database, multifactor authentication, encryption of data, regular updates of the software, and others. So, I am in favor of data sharing with standard protocol without the breach in data security, privacy, and confidentiality.
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Sharing data provides the benefit of discovering something new by the other party. before doing data sharing, we need to know the target and the type of data according to the target. For example, sharing data for high-level dashboards for leaders, the data displayed is in the form of analytical data on the main indicators, while sharing data for research purposes is usually more detailed. Before sharing data, what we need to ensure is the quality of the data we have, complete and reliable data and in the form of data sets that are easily understood by other parties.
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Yes, because data sharing has many benefits for the community in the long run. Most notably, data sharing provides benefits in public health research. The data that has been collected by one organisation can be used by others. This is especially advantageous if the data collection cannot be replicated. It also can help to increase transparency and thus increase the trust of research findings. This will also push the quality of data collection to be better.
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I would consider for the data sharing if I was in charge of the data set——may be in my dream tonight, who knew?. The data sharing can be a ruthless weapon or bring massive benefits for the greater good, depending on how you handling it. If you shared the data just to make another number for your dollar bills and what if that shared data contained financial data, like credit card numbers or something, or your address. Can you figure out the consequences of that?. For me, I wouldn’t choose that wicked way. The data sharing is most beneficial in the emergency, outbreaking situation and also the rare disease. In the emergency or outbreaking, we need to collect as much as information we can to develop the countermeasures.
Rare disease, as its name suggested, is a condition that affects only a few people. The amount of patients are not sufficient to analysis so the data sharing is also crucial approach in this case too. -
I’m joining the “yes” side just like everyone else. As explained by the guest speakers, sharing data enables endless possibilities. A hurdle experienced by one researcher may be answered by another researcher through data sharing.
In the context of COVID-19, one of the best examples of data sharing is making the sequence of COVID-19 variants publicly available such that it can be detected by other countries. This enables faster research output on transmissibility and virulence of each variant and paving way for health ministries to implement preventive measures to combat the surge of cases in relation to the variant.
While data sharing has its fair share of disadvantages, it can be controlled if the researchers are responsible in handling data and are bound to the ethical and legal obligations.
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Since health data sharing can advance medical research and innovation, as a data setting person should definitely think about this issue. However, another point that should be concerned are the personal confidentiality and ethical issue. Data sharing should refer to the strong rules and regulations. Moreover, they need good governance to manage all of the data and make data sharing system reliable for people.
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I will consider data sharing. It will provide several benefits such as data exchange across settings, supporting research, providing accurate patients history, decreasing duplicate medications or procedures, and reducing medication errors. However, we need to ensure confidentiality and data security by setting well-controlled regulations/protocols and having supportive teams to handle the system or any errors.
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I would say sharing as everyone did. In modern health care, data are invaluable for research and knowledge. Data creates a lot of information that could use for the development of healthcare practice such as a big registration or trial that need a large number of participants sharing data could help them develop the protocol and we could use those protocol for our patient as well. The other example is the COVID-19 pandemic data, we could see that sharing data is very important to the other country to handle the outbreak or create a vaccine or treatment guideline. However, we should de-identify the personal data and keep it private for our individual patients.
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I would say that I will do data sharing.
There are a lot of advantages from data sharing. Data sharing can bring abundant knowledge that could help millions of people around the world as we can see from data sharing about COVID19 situation.
However, we have to do it carefully. Data sharing should be managed properly. We should inform data owners about how data will be managed if they allow us to collect and share their data. De-identification should be done properly. Additionally, I think that to agree with data sharing should be opt-in decision for patient, unless the data is very vital for human-being like COVID19. -
I found some useful links explaining why people may not want to share data here:
https://documents.manchester.ac.uk/display.aspx?DocID=23670
Take a look and comment if you like…these reasons are valid in some situation and we should be aware of.
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Actually share the healthcare data for a reason as following described. The data sharing reduce data redundancy in the system by sharing the important information from one to one or more organizations who need to utilize data under patient’s confidentially . However, data sharing should be under the control form authorized organization for privacy purpose and the laws.
Taksin U.
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