It will depend on the situation that is going to share the data. Like in the conversation, I agree that in an emergency or epidemic, we ought to share the data without a doubt and that each patient’s identity should be kept private. If sharing the data could have a detrimental effect on the patient, we cannot do so without that patient’s consent. I think data on a topic will offer fresh perspectives that can help prevent the detrimental effects on the population’s health.
I will be thinking about more how the data will be shared for one organization or nation. In that way, I like the fact that the “Governance system for data sharing” is important. We should set up the data sharing guidelines primarily as an organization or ministry, which should decide what categories and levels of data can be shared with which others. Obtaining the study participants’ consent and de-identifying the data will be essential for releasing the research findings. Additionally, I believe that disseminating aggregate data might be a means of offering condensed insights without compromising individual data.
Let me share a good example per my experiences, the information management section of the World Health Organization gathers data quarterly from development or humanitarian organizations that deliver any healthcare services per area cluster. This is a good example of aggregate data sharing. The organization provided aggregate data—which does not include personal information—under this 5W data, which is useful for understanding the healthcare system’s situation in the area.