Reply To: Week 4 Topic 1

[tullaya.sita]

For this question, I think it depends on the purpose of data sharing and the intention of the data’s owner.
As Arjarn said in the discussion VDO, I totally agree with some specific issues. Especially for data preparation before sharing and purpose of the use of data.
The first thing to consider is, before data sharing, deidentification of the data is crucial. The dataset that shared should not be traced back to identify the data’s owner. Neither by direct traceback or environmental traceback. Data preparation before sharing is also an important issue. The security, confidentiality, and integrity of shared data should be ensured before sharing. Finally, the correctness and completeness of the data set should be checked.
The second thing is the purpose of the use of data. If the user will use this dataset for a public purpose or an emergency situation, like in the pandemic spreading of COVID-19. I think it is reasonable to share some of the data such as the clinical manifestation of patients, age of patients and their characteristics like underlying disease, how they received organism and the result of treatment. For warning and prevention in all other areas. Unlike in normal situations or for research purposes, data sharing should be made under the patient’s consent to share their deidentification data with others.