Before thinking about sharing data, we should aware that why we need to share, and what the pros and cons of data sharing in this situation will have occurred. I want to give you an example of a data sharing plan, in my organization, we have got the pharmacogenetics profile of the patient who received an allopurinol drug. The data is about allele HLA-B*58:01 Genotype, if the patients have the mutation in that gene they will have an adverse drug reaction. Therefore, for protecting them to the risk when they change the hospital, the data should be shared between the hospital. Now we are at the beginning of the process and we should give a consent form back to previous patients and the prospective patients should consent before receiving the service. Moreover, we need to think about how to share data over the hospitals about security, deidentification, avoid stigmatized individual data, interoperability, for example. I think this project will be a good example and then we can share other important data later.
Reply To: Week 4 Topic 1
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