Should you give the data out?
No, I should not give out the full individual-level data as requested because it would violate patient privacy and confidentiality, which are core principles of informatics ethics.
How do you not violate any of the General Principles of Informatics Ethics?
I must protect privacy, ensure confidentiality, obtain proper authorization and share only necessary, anonymized information.
If you want to provide the data to them , what and how will you do it?
You can provide de-identified or aggregated data after removing personal identifiers . Before sharing, I will get ethical approval, sign a data-sharing agreement and ensure the researchers agree to use the data responsibly and securely.
