1. Should you give the data out?
No, I will not give the data out without free and informed consent of the concerned individuals.
2. How do you not violate any of the General Principles of Informatics Ethics?
I will ensure that the study follows the ethical guidelines on research, in particular the Declaration of Helsinki. Local policies and government regulations should also be followed.
3. If you want to provide the data to them , what and how will you do it?
First, a data management and sharing plan should be developed before any data collection. The WHO policy and implementation guidance for sharing and reuse of health-related data for research purposes can be used as a guide in developing the plan. Since the researchers need data at the individual level, anonymization or de-identification should be done to protect the identity of the individuals. Free and informed consent of the concerned individuals should also be obtained.
