Should you give the data out?
How do you not violate any of the General Principles of Informatics Ethics?
In the given scenario, I think I cannot provide the individual-level data as requested. If I provide these data, I violate the General Principles of Informatics Ethics in several aspects:-
– Information privacy and disposition about privacy data in each individual’s disease status, home address, contact number, and other private information
– legitimate infringement that violate the right of privacy and control over personal data and
– accountability for protect these data
If you want to provide the data to them, what and how will you do it?
In the forced situation that I have to provide these data, I should ask and negotiate with them about their study for which information is necessary to use and analyze. If some data should not be used at the individual level, they should be provided at the village or sub-distinct level. If some data have to be individual level, they should be anonymized to protect the private information before sending them to the research team.